Realities of Brain Surgery from a Patient Perspective
After surgery, and after talking to many many doctors, I have come to a major conclusion... Doctors have very limited knowledge about the brain, how it works, or what the effects of your surgery will be. If you are right-handed like me and have surgery on the right side, please listen to those who love you about the actual repercussions of your surgery. The right temporal lobe is responsible for memory, which means that you will often be completely unaware of how inaccurate your memories are. This is the hardest part for anyone going through memory or cognitive issues, in my opinion. I distinctly remember many things—the problem is that they do not match my husband's memory of the same events. This causes a tremendous amount of anger and frustration on both of our parts, his more so than my own.
Realize that no matter what they tell you ahead of time, there is no way they will know the repercussions of going in and rooting around in your brain. There is simply too much that is unknown about how the brain works and how it is connected. There WILL be repercussions to the surgery, they will be severe, and they will be life-long. The brain does not heal, but it can reroute itself, which also causes its own set of complications. Know going in that while surgery maybe your only option, as it was in my case, it is also not the same as surgery on another part of your body. In other parts of the body it is easy to see where the disconnect is and make alterations for it. In the brain, there is no way of doing this. Even EEG's will only say that the brain waves are abnormal, which is not much help.